During that time the families have won support from several local businesses.
Now they have agreed to form a charity as a branch of national organisation Scottish Huntington’s Association to properly manage the funds destined to provide vital support.
Member Jock Anderson said: “We feel it’s the right time for this. It could open a lot of opportunities for our members.”
The first meeting of the group will be held online on Thursday, March 18 at 7pm.
Anyone wanting to participate should join the Moray HD Support Group on Facebook or call Mr Anderson on 07748 124784.
Huntington’s Disease: Families in Moray to form charity to help fight against genetic illness